Local, how to find, and more

  • Eczema support groups are gatherings where you can meet other people with this skin condition.
  • Nurses, social workers or volunteers often lead these support groups.
  • You can find groups in person through your doctor or through an organization like the National Eczema Association, or online by searching Facebook and other social media sites.

Living with a condition that affects your skin can have a big impact on your emotions and self-esteem.

When swollen, itchy patches of eczema appear, they can be hard to hide. They can appear red, purple, ash gray or dark brown, depending on your skin tone. They can also be thick, dry or scaly.

Eczema can make you feel stressed, depressed and lonely, but joining a support group will show you that you are far from alone.

These groups, some led by healthcare professionals and others by volunteers or community members, are places where people with eczema come together and discuss the symptoms and challenges that concern them most.

Some eczema support groups are in person, while others are online. Here’s how to find a support group that meets your needs.

National organizations and independent local groups hold in-person support meetings. Some of these groups also have online options.

Here are some places to find support groups near you.

American Asthma and Allergy Foundation (AAFA)

AAFA is the world’s oldest non-profit organization supporting people with asthma and allergies, as well as eczema. It hosts support groups across the country, each supervised by a medical professional. If you don’t see a group in your area, AFOA will help you start one.

Find a support group.

National Eczema Association (NEA)

The NEA is the leading voice for the more than 31 million Americans with eczema. This non-profit organization promotes research, shares information about the condition, and provides advice to people with eczema nationwide.

NEA offers support through its website and toll-free number (800-818-7546).

Find help.

To meet

Meetup is a virtual community that was created to connect people through online and in-person events. Two eczema support groups are available in the United States, one in Sacramento, California, and the other in Austin, Texas.

Visit the website.

Online support groups make it easy to connect with other eczema sufferers, without leaving your home. Here are some websites where you can start your search.

Facebook

Facebook is home to several eczema support groups, where participants share new research on the disease and swap tips. Keep in mind that all information shared in these groups may not be accurate and medical advice should be from a licensed professional.

Eczema Support Group

This group has more than 14,000 subscribers. It is open to anyone with eczema, as long as they are not trying to advertise a product or service.

Check out the support group.

Eczema Parents

This group was born out of a little girl’s desire to help other children with eczema. Her mother started Eczema Parents to provide a forum for parents and other caregivers to share treatment strategies that have worked for them. The group has over 10,000 members, but it’s private, so you’ll have to ask to join.

Visit the online support group.

ITSAN Topical Steroids Withdrawal Syndrome Support Group

Topical steroids have been a treatment for eczema for over 50 years. These medications work well to reduce inflammation and relieve symptoms.

However, people who take high doses may develop withdrawal symptoms such as skin discoloration or burning of the skin when they stop taking steroids.

This group is a place where people with topical steroid withdrawal syndrome can share their experiences and offer advice on managing symptoms. As this is a private group, you will need to request to join.

Learn more about the support group.

Healthline: Living with eczema

This group of around 20,000 members, run by Healthline, offers information and support for everyone with atopic dermatitis.

Visit the online support group.

Other online options

Total Eczema

This online community is the brainchild of the International Alliance of Dermatology Patient Organizations (IADPO), also known as GlobalSkin. It is an online community that brings together people with eczema and their loved ones to share common experiences.

Explore the website.

Start by asking the doctor who treats your eczema. This may be your GP, a dermatologist or an allergist.

Your doctor can refer you to a support group at your local hospital or community center.

You can also contact organizations such as the NEA or AAFA and ask if they host support groups in your area. Or you can search online through Google or a social media website like Facebook.

A support group is a place where you can connect with other people with eczema, either in person or online. If you’re managing eczema on your own, it can be a huge relief to finally be around people who understand what it’s like to live with this skin condition.

During the support group meetings, you will learn about treatment strategies and tips that other people have discovered to relieve their eczema symptoms. This can help you feel more in control of your condition.

These groups also provide a safe space to vent or let go of your worries about eczema.

Some support groups are led by a nurse, social worker, or other professional who has experience treating eczema. And some invite guest speakers, who may be doctors, researchers, or eczema advocates.

Support groups give you the chance to meet other people with eczema online or in person. You can learn from their experiences and share what worked for you.

Ask the doctor treating your eczema to recommend a support group in your area. Or search online for a virtual forum, where you can connect with people from across the country or around the world.

You will get the most out of support group sessions if you are open and honest. Be respectful of other members, even if their experiences differ from yours. And remember that these groups do not replace the medical advice you receive from your doctor.

Virginia S. Braud