MG Support Group | Eyewitness News
WILKES-BARRE, LUZERNE COUNTY (WBRE/WYOU) — The month of June is dedicated to raising awareness of a neuromuscular autoimmune disease. Only about 20 out of 100,000 people have it.
A prominent public figure who lives with the condition wants to help others in the fight.
Since 2018, political analyst David Yonki has served as a health educator for the town of Wilkes-Barre. He has been struggling with a personal health issue for even longer.
“It completely upset me because it happened so suddenly,” said David Yonki, facilitator of the Harry Krewsun Myasthenia Gravis Support Group of NEPA.
He was diagnosed with myasthenia gravis or MG for short.
“I lost my speech pattern. I looked like Donald Duck. I also had problems eating and swallowing and couldn’t keep my head straight,” Yonki explained.
He has been in remission for nine years from an illness that Yonki had trouble understanding.
“The doctor told me what it was and I didn’t accept it. I thought no, it didn’t happen to me,” Yonki added.
Besides medicine and surgery, he found he needed something else, support.
“There was this support group that was in Lackawanna County by Vera and Harry Krewsun,” Yonki said.
“And he came one day and we knew he was in trouble. And that was obvious to us,” said Vera Krewsun, co-founder of the Harry Krewsun Myasthenia Gravis Support Group of NEPA.
The co-founders of the support group have lived with this same struggle. Harry Krewsun was diagnosed with MG in 2004. Complications from the disease claimed his life in 2017, but his widow didn’t let the support group go away.
“It’s gratifying to me now that Harry is gone that we as a couple have been able to help others,” Vera Krewsun said.
The group has hosted dozens of MG patients and caregivers over the years. He is preparing to hold his first in-person support group meeting since the start of the COVID pandemic.
“Harry always wanted to make sure people knew you could live with the disease and that you could be helped by others,” added Vera Krewsun.
It helped Yonki who encourages others, as his office sign says, “always aim ridiculously high” when living with MG
“It humbled me, but it also made me realize that every minute of the day counts,” Yonki said.
The MG Support Group meeting is scheduled for Saturday, June 11 at 11:00 a.m. at the Allied Services Corporate Center at Clarks Summit.